Hello, everyone! Welcome to the site. If you’re here, you either have Crohn’s, know someone with Crohn’s or are curious about the disease. Or maybe you’re a very family oriented person, so you’d like to just unwind with some stories of mom-ing. And if you have a child with some sort of disability or special needs, you’re in luck, because so do I. No matter the reason, Crohn’s Chronicles isn’t just about Crohn’s Disease. I explore all sorts of themes of health, including mental, along with just the foundations of parenting and family. But first, I figured I’d tell you all about myself and my family, so you can get to know us before jumping into my blog and videos!
My name’s Mara Jade and I was diagnosed with Crohn’s Disease in August of 2018 when I was 19 years old. When I was first diagnosed, I had absolutely no idea what it even was. I was terrified, to say the least and I fell into a really dark state of mind. Since then, I have isolated myself and even though that wasn’t the healthiest thing to do, I learned so much about myself and life in general. I’ve come out as a stronger and more positive person and have been taking the initiative to have a much better outlook on life. We only have one life to live, so why waste it feeling sad. I have also had an ileostomy surgery due to Crohn’s.
My son Caspian, is two. He is lucky, because as of right now, his only issue with health is the common cold and occasionally pink eye, from daycare. My husband, Chris is usually at work while I’ve been a stay at home child and pet mom. I own a few reptiles along with some dogs and cats. All considered my babies as well. We also have a son named Fox. He was born January 27, 2020 and is in NICU for a few months, and he himself is already experiencing a multitude of issues, including Hydrocephalus, heart defects, bowel problems and the possibility of developmental problems. I post quite a bit on him as well, for all you parents who struggle with similar ordeals.
I’ve created this website and Youtube channel to try and help others who are suffering from my disease or to inform others and spread awareness on it, because let’s be real, half of you probably still don’t know what it is. But to also showcase my sons problems as well, so maybe other parents can feel comfort in knowing they aren’t alone.
While we are still learning about all of these random health issues that keep popping up in our lives, we hope you all choose to join us by reading our blog and watching our videos. I do not claim to know everything about anything, because lord knows I don’t. I’m just trying to show others that there are people out here with problems too, and you are not alone.
Thanks for visiting guys and hope you can find some useful information within this site!